A man with a severely deformed head who won a competition searching for Uganda’s most unusual looking man wants to use his fame to launch a music career.
Godfrey Baguma, 47, was thrust into the limelight for his unique head, becoming a local celebrity for his unique looks and helping him launch a career in African pop music.
But the singer’s mystery condition has never been diagnosed – and he is always fearful he may have passed it on to his eight children.
He said: “Right now I am afraid because I have a little daughter who kind of resembles me. I look at her head and I believe that she might look like me.
Sometimes I worry because my children are still very young. I worry about what would happen to them if I died. I think about that a lot now.”
With Godfrey’s health recently declining, Doctor Tony Wilson – the head of medicine at Mbarara Hospital – decided to carry out tests to diagnose him.
Doctor Wilson said: “He has very widespread abnormality in his head and pressing on various parts of his brain. His posture is compressing his chest – this is why he’s not breathing well.”
Six weeks after an MRI scan with Doctor Wilson, Godfrey received the full examination he had always hoped for.
He suffers from a rare condition called Fibrodysplasia – which affects the growth and placement of his cells and tissue.
With the correct medication, Godfrey’s health can be managed and better still – he cannot pass the disease down to his children.
He said: “When I was born my mother looked at me and said that I was not a normal child and she left me. Thankfully my grandmother took care of me.
“I was scared to go out and mix with people. People would say I wasn’t a human being, that I looked like a strange creature. But now I have to accept how I look.”